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Contact Nani at chroniclesofnani@gmail.com
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Tuesday, April 24, 2012

Tell Me Tuesday

coloradolady

It was a little less crazy today, so better late than not at all, I get to join Suzanne at the Coloradolady for Tell Me Tuesday! Here’s today’s question:

What is the best part of being you?

I did a musical photobook that was shown at my 40th birthday party. I did it just like I’d do a video for someone else with pictures from babyhood forward and appropriate music choices for different eras of my life. I was pretty pleased with it, lots of detail but I know the editor. The twist is that while videos of this sort usually have a happy birthday message at the end, since this one was done BY the birthday girl instead of for her, the final message, which made me cry editing it, watching it and still makes me cry if I watch the video or just look at the graphic, which essentially thanked everyone there for making my world one worth living in.

And that’s the best part of being me. I have wonderful people. I’m an optimist and a happy person because I know I can depend on the people who are really important, really mine. I’m in the unenviable position of being able to know how truly blessed I am. Good friends will still call you to talk when you are pretty much wheelchair bound. Great friends will still spend time with you when you are someplace together. The friends beyond measure call you and invite you to do all the things you’ve always done together, even knowing that they’ll need to help you get the wheelchair out and they’ll be the ones doing any lifting. I have so many of the latter.

I’ve read horror stories from people with my disease, about people who don’t understand who say “get some more sleep if you’re tired” or the classic “but you don’t look sick.” I haven’t heard those things. My family of friends and relatives don’t question, they learn. They ask to know what they can help with, what to expect and they adapt just as I did. I can’t put into words how much that helps.

So the beautiful people who made my world one to celebrate living in for so many years, still do. That truly is the best part of being me.


2 comments:

don said...

I need to think about the best part of me! :-) Interesting comment.

Coloradolady said...

Nani, you are so lucky and blessed to have those kinds of friends. You are blesses beyond measure.