Another week of things going wrong punching me in the face. BUT another week when my face survived!
It was also another week where I recorded edited and did the whole shebang on Wednesday all day and most of the night. I'm uploading and going to sleep.
Hopefully things are getting back to normal and I'll be tackling "list 2” to get my life back!
The editor promised there would be Short Stories 2 because I talked too much in short stories 1! (She knows me so well you’d think she was me! 😉)
So here are the last four stories I discovered in my early smash books.
OK, I've had a couple of colds, 2 bouts of food poisoning & I just plain don't have enough help to keep me going. Very soon that last part, I pray, will be fixed and I can start being human enough to tape again every week.
I'm sorry that I just disappeared for a while but I'll be back again on my normal basis soon. As always prayers and good thoughts are all greatly appreciated.
See you all soon!
I know I don't write good old blogs like I used to. The truth is I'm very involved in my YouTube project and then actually has a lot to do with the fact that I can talk much better than I can type. MS has done a number on my hands. When I do type pages or even occasional replies, when I can, it's using the speech to text function and going back in and fixing what was right if my hands are up to it. (Because anybody that's ever tried to send a text on their phone using it, KNOWS how erratic it can be.)
I occasionally do special vlogs on YouTube called story time and now I'm adding the debut of a special one called Music. Just in time to be late for Valentine's Day the subject of the debut of the music series is love songs! I hope those of you that click on the blog and it's new check out the videos. And I'm definitely inviting everyone to play along and leave something in the comments this time. I hope you enjoy it!
But the truth is anyone living with a chronic illness or in a wheelchair, for whatever reason, is a superhero if you see them out there with everybody else. If you have no idea how much it takes to get any of us out there with you, or if you’re one of us and you think you're the only one that needs that much help, grab a cup of whatever is coffee for you and join us today!
Christine Miserandino ("Spoons" creator) 2010 annual NC lupus Summit
Stop on over to YouTube to view the vlog and subscribe to Chronicles of Nani!
We all fall victim to Murphy's laws. But Murphy lives in our guestroom. I talked last week about secondary illnesses latching themselves on to people with chronic illnesses and in wheelchairs because of things that change in their lives. I made the mistake of mentioning that even witth MS the common cold is more than common.
It turns out that Murphy watched that episode of chronicles of Nani.
I acted quickly when the cold symptoms started, and yes my doctor knows everything that's going on, so it didn't end up lasting as godawful long as it has in the past, but I actually had a cold. It knocked me on my butt for a little while and when I look at my face… Well there's no sense in making the intro longer than the actual vlog.
Once again I say, "a chronic illness is enough! We should be free from anything else." I think that goes for living in a wheelchair too. It doesn't matter how you ended up in a chair, you face enough challenges that you shouldn’t how many more.
Unfortunately it's those illnesses and the things that you can't do when you're in a wheelchair that leaves you very susceptible to lots more. The idea for this vlog came very simply. I was actually feeling too sick from one of those bonus diseases to properly prepare.
I’m back! After three months away, I have so much that I'd like to, I feel like I need to, share.
This week I'm talking about the reality that, to me, 2020 was so much better than 2021. Starting with a tear. that's not seen on video, Coffee in my Betty White coffee mug, the final exclamation point on how much I hated the biggest part of 2021, and on to the clinical depression that caused my over three months away from YouTube. (And most social media in general.)
YOU are the key to my finishing getting out of my current depression. My therapist and I agreed that after fixing other things they were causing my problems, it was going to be getting back on YouTube on a regular basis that would get rid of the last of my depression. (Thanks to all of you in advance.)
#depression #ClinicalDepression #BettyWhite
I was still tired and you can hear it in my raspy voice, but the vlog must go on!
After celebrating my birthday with things planned for three days in a row, it took me another 3 1/2 days to start to recover and get my normal energy back. It was totally worth it, but it's a lot easier to do if you know what your energy limit is and make an effort not to overdo it too much. In my life before multiple sclerosis, I tended to overdo it anyway. But it takes me longer to recover now. There was a time when I worked 2 80-hour weeks in a row producing a hockey game for a charity I really believed in. My boss told me she didn't want to see me for three days after the production was done. Now, I carefully schedule how long it takes me to complete a simple vlog once a week and that requires a few hours of rest in between and after. My energy limits changing is probably one of the hardest things multiple sclerosis has made me adjust to.
But you can do you things that are fulfilling and things that are fun even if you are living with a chronic illness or are always in a wheelchair. You just have to learn to adjust what your limits are and go ahead and push them! Just PLAN your time for recovery, so you can push those limits again.
It's not just a story I'm out though streamliner festival at Spencer North Carolina in 2014, what it is, is the connection of that festival to a fantastic family day riding behind the Norfolk & Western 611 steam engine in 1992. I have fantastic memories of both - one was a trip where I climbed up into the cab of the locomotive and one was being able to travel on the museums train trip in my wheelchair.
Two very special memories forever connected by one very special locomotive.
Sometimes you lose control and lose track of things that are going on. This is actually not a sad vlog, it's just a repeat vlog. Instead of finishing up “Overnighters 2,” I ended up with the offer of going on a couple of them & running out of time for editing. So this is a replay f “Heat" and ways to beat the heat outside. That's something that I’m really going to need since I'm going to be out for a few days in the summer!
“Overnighters 2,” will premiere NEXT week while I enjoy a couple of those overnighters myself.
'm in a wheelchair and I can't stand up at all I need assistance to move around my own home and I can't even dress myself without a lot of help and then be put in the wheelchair to leave the house. That doesn't mean I'm "homebound.”
Even in the wheelchair as long as you have someone who can help you a little bit and travel with you for an overnighter you can get away from the house and enjoy lots of things the dark too far away from where you are but far enough that they are traveling!
This two-part vlog let you know about things that you can do near you and things that you can do for free because you're in a wheelchair. It's not necessarily always a bad thing do you have that piece of electric or self propelling metal underneath you.
www.disabilityresource.org
