Welcome to my coffee shop in the cyber neighborhood!


The Chronicles of Nani On Video

I am overcoming my inability to type with my ability to talk (and talk and talk and talk) I'll be posting a video every week on my YouTube channel. I'll be posting those videos here too along with an occasional regular blog in the mix. (As long as my hands are up to doing the extra typing.)

You'll be able to watch the videos here, but I encourage you to stop by my channel at YouTube once I'm up and running to follow me and get my numbers started!


Welcome to my coffee shop in Cyber Space
Try the latte with a slice of black forest cake!


Contact Nani at
chroniclesofnani@gmail.com

Tuesday, November 14, 2017

Where I’ve Been


It’s been a rough year. It's still a rough year. I'm sorry if I've worried my cyber friends but I've been processing a lot IRL. IRL, in real life. My blog is mostly an extension of that"real life,” except the doctors don't read my blog and the cats can type. As you know, if you're a regular reader of this blog, we lost our Kaline to kidney failure at the end of July, just before her 12th birthday. Today Carla, who we adopted at just over a year old from the shelter a month before our first wedding anniversary, is in surgery. David had discovered a mass on her underside and when she went to the vet last week she was diagnosed with cancer. Blood work and x-rays showed it to be a rather large mass but it wasn't in any major organs which increased the possibility of surgery being successful. I pray that she’s strong enough to handle the anesthesia and recovery.

Two of our three cats very sick in one year is devastating. We don't have kids, we have cats. They're the soul of our house, what makes it home. They are my comfort and company when I'm home alone. In this year I needed that comforting company. Please send a prayer and good thoughts for strength for Carla today.


In April testing, my liver levels had gotten very high. That's a possibility with the medication that I was taking for MS so I was taken off that medication. The plan was when my liver levels came down we would choose a new MS medication for me. But normally after one is taken off Gilenya, in 2 or 3 months the levels come down. but with me that didn't happen. The liver levels stayed up and other things went weird. I began to gain a lots of weight in a short period time after I'd already been progressively gaining while staying true to my diet. My doctor said with the way that I eat, even not be able to move a lot, I should be losing, not gaining. She had ultrasounds of the liver and gallbladder and then I had blood work done.

I have gallstones! Yay, something new! I also had an increase in my hypothyroidism and glucose. For the first time ever in my life my glucose level is over normal and I can be considered diabetic. She increased my thyroid medicine we were going to see if bringing that level down would give some weight loss and bring the glucose down. She also sent me to a surgeon to see you about having the gallbladder removed. My inability to move and MS would make the pain and other symptoms of the gallstones considerably worse and the gallbladder is not an essential organ. My fear of surgery diminished considerably when in conversation with friends I realized how many people I've known for years have been living without a gallbladder.

The gallbladder surgeon, who was the complete and total jerk and someone I wouldn't let cut into me anyway, determined I didn't show enough symptoms to warrant gallbladder removal. He sent me back to my doctor with his suggestion to refer me to a GI specialist and a gallbladder MRI. Oh joy, oh fun, MORE MRIs! Like I said, processing a lot.

Last week was semi annual Cleveland Clinic day. At this point I've had no MS medicine since April. That's mostly evident in the loss of feeling and control in both of my hands and arms. This only adds to the diminished blogging! I can do stuff in Photoshop for scrapping but I tend to do pages that don't have a lot of journaling. Even speech to text requires going back in and fixing words that aren't quite heard correctly by the computer. And I get tired a lot faster from doing everyday things.

So this year I've been dealing with my hands and arms feeling more useless and increased fatigue from MS, a mysterious gallbladder, the psychology of unexplained weight gain, controllable but uncomfortable reactions to my thyroid medicine, major money problems, the loss of the cat who was "mommy's girl,” and the sweet and affectionate girl we call "the good one” is in surgery as I type. It's been a rough year.

**I'll be reading and catching up this afternon and tomorrow. Look for me in comments!