Welcome to my coffee shop in the cyber neighborhood!

The Chronicles of Nani On Video

I am overcoming my inability to type with my ability to talk (and talk and talk and talk) I'll be posting a video every week on my YouTube channel. I'll be posting those videos here too along with an occasional regular blog in the mix. (As long as my hands are up to doing the extra typing.)

You'll be able to watch the videos here, but I encourage you to stop by my channel at YouTube once I'm up and running to follow me and get my numbers started!

Welcome to my coffee shop in Cyber Space
Try the latte with a slice of black forest cake!

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Friday, June 18, 2021

The Chronicles of Nani - Surviving

I'm so far behind on everything. I really want to catch up, to get everything on my list of priorities done so that my time is mine again. I do realize there are just some things I should probably just say no to doing.

I've taken over making sure all of the household bills, including my medical bills, I get paid. Since I started doing that we haven't had one late payment and they do it all digital so we don't kill trees getting paper bills or just clutter David's table and never get paid. I know it's like a 1950s housewife horror movie but I called my life. But considering that when Social Security time comes around my degree and years of working will mean nothing and my Social Security checks will be based on the fact that I was a wife. It's humiliating, but I'm going to be the best darn simple wife that I can handle with MS.

But the biggest and most important priority if my world is my vlog. It makes me feel like I'm working again. That's a pretty big deal to a recovering workaholic. And that makes me feel like I'm doing something worthwhile. Like when I was a self-help group leader, I can try to help people with chronic illnesses be more positive. I also hope it helps caregivers and loved ones of people with chronic illnesses, like me, I understand better what their loved one is dealing with and to keep those friendships and relationships as close as they've always been.

I'm sorry I didn't put a note up here. There was no video last week (I put it on Facebook and Twitter, but if you don't follow me on those media, it kind a lefty wondering and I'm sorry.) I was moving some things so I could stretch a little bit because my legs were sore spending a whole day trying to edit in a hurry video that was supposed to go up last week. My husband left on a weeks vacation and I had just lost the agency that was applying an aide 9 hours a week, which is better than nothing. But now I did have nothing going in to seven days with no one coming in. To say that I was overwhelmed is a major understatement!

So, while I was trying to get last weeks blog done and I've managed to really get "in the zone" of that I forgot about stretching my legs at all. When I was moving things the most dropped to the floor and I had to wait until my husband got home to retrieve it. The only problem was it was broken. I can't edit or even do anything in Photoshop without my mouse. That's the skipped week. I got on Amazon and ordered TWO mice so there would always be a back up. The first mouse that I got mail was a gift for my friend and former coworker, Mary. The message was "enjoy your gift. Now get back to editing!" She knows you're a workaholic friend too well. LOL

Today's YouTube video it's about that week but I was so afraid of and how it turned out to be a very good week after all.

Friday, June 4, 2021

The Chronicles of Nani - Self-Help Groups

No matter what your chronic illness is a self-help group is an excellent opportunity to be with people that deal with the same things that you do. And let you know that you are not alone.

I was a certified self-help group leader with the national MS Society for about a year and a half and it was a wonderful experience. I met so many other people with multiple sclerosis and so many different types of MS. It gave me a greater understanding of what I'm living with but it also gave me a better understanding that I'm not the only one living with it. I discovered that a healthy combination of optimism and realism is key to making the most of existing with a chronic illness. 

This vlog talks about multiple sclerosis self-help groups, that will resume being person to person meetings eventually as we move towards a post-Covid world, because that's my personal disease and my personal experience. But I'm sure a web search will reveal many peer groups for various chronic illnesses as well as local person-to-person support groups.

Friday, May 28, 2021

The Chronicles of Nani - Emotional Support Pets

 I've been looking forward to finishing and posting this one for a while!

There is a difference between assistance animals and therapy pets. This week we're talking about emotional support pets, therapy pets. If you have a chronic illness, or if you're recovering from an illness or injury, your pets can be the comfort you need to recover or make it another day. Even if you're not dealing with an illness or something you're recovering from, if it's just been a bad day or a frustrating day, if you're just sad about something that's happened, your pets, furry, feathered, scaled or swimming, can calm you and make everything okay. Pets give love unconditionally and all they really want is to make you feel good.

Friday, May 21, 2021

The Chronicles of Nani - Donuts, Aide Agencies & Politics

Whew! I almost didn't get the vlog done this week! It's been a very, very busy week. Some of it is explained in the vlog, but the aide that I had left the agency abruptly. They didn't have anybody to replace her so they waived the usual two week notice to leave since there was nobody that wasn't getting paid if I left because they had nobody to assign to me. 

So with David planning on his vacation during the first week of June, I had to find a new agency very fast! I basically said “sign me up” to the first agency that called back. It's been an exhausting week with new people in every day at the beginning of the week and having to go through the whole speech of “this is here, that is there, this is how you put me in a sling, this is how you wash my back…” over and over and over three days straight. One of the symptoms of multiple sclerosis, no matter which kind you have is fatigue. The first three days of this week with four hour shifts with new aides every day has been exhausting. Add to that it's Cottonwood season! Cottonwood is the nastiest of my spring allergies. So I have exhausting new aides, medicine I take for my allergies in pain meds, which I have had to take because being that tired makes pretty much all of my symptoms a little worse. Thursday morning arrived and I haven't recorded anything for the vlog. I hadn't even really had time to write my bullet points that are my cheat sheet for when I'm doing the video recording. I didn't even know what I'd be talking about until this morning. So please watch the video and let me know what you think of my improv!

Donuts, Aide Agencies & Politics

(The Good, The Bad & The Ugly)

Friday, May 14, 2021

The Chronicles of Nani - Baseball Road Trip

 Now that I've had my Covid vaccine and I got my OK from the doctor to leave the house May 5, 2021 my husband and I went to Fort Wayne Indiana to see the Michigan Whitcaps at Fort Wayne Tin Caps. After the awful year 2020 was, and remember I also boycotted baseball because I was angry with how they did the 2020 season, but I can't stay mad at baseball. I'm a lifer when it comes to being a baseball fan. So my first day out for other than a Covid shot in over a year being a road trip to go to a baseball game was the most awesome date day with my husband that I could think of. It was a great day!

Oh and I am choosing a microphone so that when I am out loud events you can hear me more than the background. I think I did okay but next time when I'm out it's gonna be even better.