Welcome to my coffee shop in the cyber neighborhood!


Yes, I’ve been gone a while…a long while. I’ve had some other physical and subsequent mental issues. I don’t really want to talk about them. It enhances the stress and potential depression. I read an article that explains the MIA from blogging probably better than I could.


Isolation: When Our Disease Makes Us Withdraw


So whether it’s starting over or
just continuing like I was never gone…

Welcome to my coffee shop in Cyber Space
Try the pumpkin spice scones!


Contact Nani at
chroniclesofnani@gmail.com

Sunday, November 4, 2018

Weekend Playlist, November 4

I stopped the shuffle this week in a spot that made me kind of sad, it also made me understand some of my feelings this week and why they've been weighing so heavy on me. I'm not used to dealing with truly major problems alone. The first time I tried to do that I ended up seeing a psychologist for a few months. (Maybe a couple of sessions this week would've helped.)

Here are the last five songs from my library on shuffle:

Don’t Stop, Jon Batiste
Deep Cuts The Knife, Helix
Don’t Lie To Me, Barbara Streisand
One more day, Diamond Rio
Silent Lucidity, Queensryche


John and me at a New Year's party, I think I was about 19

Silent Lucidity was John’s favorite song by his favorite group. You see lots of kids in the video but the lyrics speak of giving strong quiet support and protection. John was like a big brother to me since we met when I was 15 years old. He was one of my closest friends and that unconditional support was always there. He considered me to be a strong person and a generous person, someone who always made sure no one was left behind. But the truth is, anything that is considered good about me couldn’t possibly compare to the man that John was.

I guess that song struck me right now because I really wish John was here. In October 2009, I lost the last person who could let me be worried, who could let me be weak and not feel like I was less of a person for being so human. I have a surgical procedure scheduled for tomorrow. This week has just been hell for me. My brain is tortured by nightmares because I’ve never had anesthesia for anything before, not good for the psyche of a control freak. And also for the last week I’ve not been allowed to use any of the vitamins or supplements that I take and I’m starting to feel the effect of some of those not being in my daily routine. There are vitamins and supplements that I take in lieu of advancing to drugs for some things and I’ve been cut off of some of the drugs that I take that keep some of the MS pain at bay. I’m pretty much miserable and scared. Mostly what I’ve heard from others have been things like, “don’t worry about it everything‘s gonna be fine,“ “suck it up buttercup, it’s just part of life,“ “just shut up already, it’s no big deal.“ people mean well when they tell me not to worry but I need someone to just listen, tell me they understand that I am afraid and comfort me, talk to me, make me laugh to divert the fear. John did that for me on more than one occasion.

Our last picture together at my wedding reception, July 2009

I need somebody to comfort me and quell the demons in my own brain but there’s no one left to do that for me. I miss my friend.


1 comment:

JeanneTraylor said...

Wish we were having a cup of coffee in person rather than across 4 states! I won't tell you how to feel or offer up platitudes but I will remind you to feel the feels and breathe. This is a struggle I too face all too often. I will offer you this bit of sage advice from someone who has had several surgeries over the past few years. If you are at all prone to nausea, be sure to share this information with your anesthesiologist. Anesthesia has caused his problem for me before and ended like a scene out of The Exorcist. For my last tow surgeries, I advocated for myself and expressed my concerns to all who would listen. The addressed the likelihood of head-spinning green misery up front and both experiences were much better and vomit free! Hang in there and know that some are gone, others are still here with you even if from afar.