Welcome to my coffee shop in the cyber neighborhood!

Yes, I’ve been gone a while…a long while. I’ve had some other physical and subsequent mental issues. I don’t really want to talk about them. It enhances the stress and potential depression. I read an article that explains the MIA from blogging probably better than I could.

Isolation: When Our Disease Makes Us Withdraw

So whether it’s starting over or
just continuing like I was never gone…

Welcome to my coffee shop in Cyber Space
Try the pumpkin spice scones!

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Friday, October 2, 2015

I Need To Vent

I really hope that things can get moving on replacing the seat of my wheelchair. That's been “in the works” since May. The company that's in charge of that project keeps dropping the ball and letting it sit there. Don't think that that's not gotten to the point really getting under my skin. They did the measuring and put the order together for the new seat around the end of May. When all the paperwork is completed and filed for the insurance company, I’ll have a new seat on the existing base. Except for the dust on the bottom, it’ll be a whole new chair. But the company isn’t having problems with brain-burps. They are having out and out loud brain BELCHES.

When I call to get an update of what's going on from the sales rep, because my therapist told me that's the only way I'm going to get them off their butts is to call her a couple times a week, I get to listen to her whine about how hard her job is and how difficult doctors are to work with. Personally, I think she's in the wrong line of work if it's that tough for her.

Life without the new seat for my chair is becoming even tougher for me. I've been worried for the last couple months that some of my advancing physical problems I've got are related to the MS taking a new turn for the worse. The pain in my legs has become almost constant, losing muscle control of my hips, pain in my back and the incessant sore feet have become very difficult to exist with and very stressful with me thinking that the disease is worsening. After doing some reading I found out that these issues I'm having are issues that result from being in an improperly fitted wheelchair all the time. In May, when this process started, the rep who did the order and measuring told me my wheelchair wasn't fitted properly for someone who is in it all the time. Five months later I still don't have a chair and all the things that are hurting worse are hurting worse because I still don't have a chair. I don't know. I think my job being someone who needs a wheelchair who's experiencing worse pain every day because I don't have the right wheelchair is WAY HARDER then a sales rep who doesn't like calling doctors.

I've talked to lots of people about this and there is a timeline with the date this coming soon where all the paperwork that's been done will be outdated and have to be redone. It was suggested to me, when I asked about switching vendors, that at this point in the game too much paperwork has already been done to start over but if that time where the paperwork becomes void happens before I have a chair we will definitely switch vendors. I honestly kinda hope that they screw up and we have to start over so they don't get the business because I've already been given more business from them than I should have to endure. Mobility-care is a big business, but it's still a niche market.


seamhead gypsy said...

This has been going on since May? You are much more patient than I would be. At this point I would be phoning daily for updates not a couple of times per week.

Edna B said...

There really should be a law that makes these manufacturers stay within certain timelines or pay a huge penalty and do the work for free. That would get them off their duffs!!!

Maybe a call from your attorney will get them moving a bit quicker?? If you have a friend who is a lawyer, maybe they can call and give these people a scare? Somehow I don't think these folks would be so happy to have a lawsuit threat hanging over them.

Good luck sweetie, and I hope they get moving pronto! You have a super day, hugs, Edna B.