Welcome to my coffee shop in the cyber neighborhood!

Yes, I’ve been gone a while…a long while. I’ve had some other physical and subsequent mental issues. I don’t really want to talk about them. It enhances the stress and potential depression. I read an article that explains the MIA from blogging probably better than I could.

Isolation: When Our Disease Makes Us Withdraw

So whether it’s starting over or
just continuing like I was never gone…

Welcome to my coffee shop in Cyber Space
Try the pumpkin spice scones!

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Sunday, January 25, 2015

I Am Defined

Happy Sunday everyone! Unless you’re reading this tomorrow or on any day that’s not today or some multiple of seven from today, then happy whatever of the six other days this happens to be.

I have finally been defined with a definition I agree with. For years and years I’ve taken forms of the Meyers-Briggs tests, including the all out test that I took for a job interview many years back, and the results always start with E, calling me an extrovert. I’m actually consistently an ENTJ; Extrovert, Intuitive, Thinking, Judgmental, and the description of an ENTJ fits me pretty well except that I am not that outgoing. I’m outgoing when I need to be, when I have to, but I treasure my alone time too. As a rule, extroverts can’t stand being alone. I took a test online that tells what kind of introvert or extrovert a person is, because I love taking personality tests no matter how corny they are although this one is less corny than others I’ve taken, and it doesn’t call me an extrovert. According to my results I am an outgoing introvert. Which if you look at this description; 8 signs you may be an outgoing introvert, it fits me perfectly. And I love the fact that it doesn’t call me an extrovert.

I’m in the midst of a reading dilemma. Remember I said I was going to have an upstarts book and an ereader book going at the same time? Well, I did that. If you look at my Good Reads widget on the right, there are 2 current books listed. One is a hard cover that I got in a book swap and one is an e-book, young adult fiction. I read the Harry Potter series, and the Trylle series in the beginning of 2013; don’t judge! ;) But my current problem is that I’m just not really into either one. They’re both okay, but nor riveting at all. I have a Baldacci paperback in waiting and thanks to Christmas gift cards for both Barnes and Noble for the Nook app and Amazon for the Kindle app, both on my iPad, I have a couple lists of loaded and ready to read books on the tablet. I have a goal of averaging 2 books a month and I’m not even half way through either book with only a week of January left! January and February are usually good reading months for me. I have to come up with a plan to get myself some reading time so I can catch up and start some bocks I’m more likely to MAKE time to read.

I was talking to a friend from our MS support group about the things that make MS easier to live with today than it would have been years ago, say in the 1940s when it was first diagnosed and recognized as an actual disease. Without MRIs, there was no apparent scarring of the myelin to see on the brain or spine images and while it wasn’t a death sentence for sure, it did affect life expectancy just because they knew so little about it. So much about diagnosing and understanding the disease has improved in the many years since then.

The first disease modifying medication was approved for use and became available in 1993 and more medications became available after that; all injectable. The first oral medication was approved in 2010. That was my first choice in 2011, anything to avoid needles. There are 10 medications an MS patient and their neurologist can try, depending on what side effects you want to chance. But just think;25 years ago there were NO options. You were diagnosed, treated the symptoms as best you could and you knew the disease was going to progress with no way of slowing it down.

Back in that day, just prior to a drug for the disease, it wasn’t considered a disability. In fact the ADA was a baby in 1990 with members of congress that still didn’t want it to pass. We MSers were still destined to end up in wheelchairs and there were still people fighting tooth and nail not to have to widen a door for those chairs or anyone else with a wheelchair, walker, cane or just limited mobility or allowed mobility for breathing or heart conditions. We have advocates and are encouraged to be self-advocates in the fight to continue living instead of just existing as helpless invalids; we became legally valid!

But we really acknowledged the internet, tablet, smart phones. The internet means we aren’t hopeless and lonely when we are at home. The incredible ability to reach out to others like us and be cyber support is fantastic. I couldn’t live without my iPad. With the numbness in my hands that has me dropping things all the time and unable to write having my planner and several reading apps in one device, with a padded cover and replacement insurance on it, is such a blessing It also has a notepad, radio and MP3 storage, camera and my social media apps. And it has speech-to-text for every app I’d type in, a godsend for the times when my “fumblehands” just aren’t up to hitting the right keys. This is not an ad for the iPad. It’s an acknowledgement of how technology makes disabilities less disabling. There have been many times in the past year that speech-to-text software,, like Dragon on my PC, has written this blog!

It’s just amazing and wonderful. How many times did I watched Star Trek episodes where someone was carrying around a tablet with information essential for their job on it? I’m just waiting now for the hypo spray that will zap my MS all together? THAT’S something I’d take to our support group for “share and tell!”
My final note today is for everyone in the areas where the current storm is headed BE CAREFUL! The nasty winter storm the Weather channel is calling Juno is supposed to dump a TON of snow and nastiness on the east! We have relatives and friends that are expected to get in excess of a foot of snow. My friend Edna of Miss Edna’s Place will be seeing it in her part of New England as well, what she describes as feet of inches predicted on TV. If you are in the areas getting snow and hurricane winds, stay as safe and warm as possible and the rest of us please send good thoughts and prayers for them. We’ll get a few inches in Toledo and I’ll complain as I see it falling but then I’ll remember that I don’t have it so bad and check Edna’s blog or ask David if he talked to any of his brothers.


seamhead gypsy said...

Hey, another thing we have in common! I'm an outgoing introvert too..though I think I'm more of the introverted part of that makeup.

I received a new John Grisham novel for Christmas for my sister in law. So of course I read that one and then read a few more of his works that I had missed over the years. Did you know he has written 27 novels? I was surprised at the amount. I think I've read about 9 or 10 of them.

As I write this, the Mrs. is driving from the land of cleaves. She spent the weekend working and will now be home with us for the next four days. It will be a nice week for us!

Debby@Just Breathe said...

I took the quiz. I was 90% Outgoing Introvert!

Edna B said...

Thanks for checking on us. This storm really is a doozy, but we still have our power so we're okay. We've been removing the snow since Monday afternoon, either by shovel, snow blower or snow plow. It's non-stop. It's after 5 pm (Tuesday) and the wind is still blowing and the snow is still falling. Joe has been outside in all hours of the day and night clearing away snow, and the plow has been here twice already. It will come back tomorrow for one more sweep.

I have to say though, that it all doesn't seem so bad now that I don't have to go out to drive to work in this mess. So right now it's good to be retired.

Pogo watched a lot of the activity from his storm door. I guess it wore him out because he's lying next to me snoring away.

I have to agree with you about the progress that has been made for folks with MS. I'd like to see that hypo spray too. Wouldn't that just be wonderful?

I was going to ask you how the Dragon program was working out for you. I may try it out one of these days. Dyslexia makes me type inside out a lot and I have to keep re-typing, so I thought this might be a good program.

It's almost time for supper, so I think I'll go see what's looking tasty in the fridge. You have a wonderful evening, Nani. Hugs, Edna B.