Chronicles of Nani - More Vaccine

We start off with a little bit baseball! Actually, a whole bunch of baseball. Then I wheel onto my accessible soapbox to talk about Covid, changes in vaccination for immunocompromised and questions that can't be answered about the selfish people who are afraid to be vaccinated and are possibly helping the pandemic get worse.

 

The Chronicles of Nani - Outtakes + Cats

This is a collection of clips from the cutting room folder. It's funny or informative bits that just didn't fit in their original vlogs. There's also a "halftime show" with some short cat bits. Because cats seem to rule YouTube. LOL 

 PSA "Prince,” The Humane Society of The United States, Maddie’s Fund & The Ad Council, 2016.

Chronicles of Nani - Medical Options

 I've been lucky as far as getting matched up with good doctors. I have a tendency to really research them before I see them, EXCEPT when I was being shoved from doctor to doctor and specialist to specialist because everybody knew there was something wrong with me but they didn't know what it was yet. One doctor that everyone said was very good but a jerk, ended up being incredibly honest and respectful with me and one department that was supposed to be totally dependable screwed up big-time on a set of my second of three MRIs in five months.

The neurologist who diagnosed me with MS was fantastic and he just recently retired. I struck even greater gold being able to take a look at the other two neurologists the CPA I really like works with and I found a neurologist that is absolutely fits the type of MS I have even better. (Now I just hope he doesn't retire for quite a while! LOL)

But I've also ended up with doctors and specialists that have sent me looking for doctors and specialist who I work with better. There are all kinds of qualified people and all kinds of people in need. A mutual line of communication and respect is necessary for it to work on both ends. It hurts so bad when I talk to other people from other MS patients, to other chronically ill patients, to people just going in for a yearly physical, who come back saying they don't feel respected and they don't understand half of what their doctor tells them. But they keep on going back because they don't think about the fact that they just don't have to. If there are better choices - make them! When it comes right down to it it's just their paycheck. It's your LIFE.

Chronicles of Nani - Know Your Limits

I was still tired and you can hear it in my raspy voice, but the vlog must go on! 

After celebrating my birthday with things planned for three days in a row, it took me another 3 1/2 days to start to recover and get my normal energy back. It was totally worth it, but it's a lot easier to do if you know what your energy limit is and make an effort not to overdo it too much. In my life before multiple sclerosis, I tended to overdo it anyway. But it takes me longer to recover now. There was a time when I worked 2 80-hour weeks in a row producing a hockey game for a charity I really believed in. My boss told me she didn't want to see me for three days after the production was done. Now, I carefully schedule how long it takes me to complete a simple vlog once a week and that requires a few hours of rest in between and after. My energy limits changing is probably one of the hardest things multiple sclerosis has made me adjust to. 

But you can do you things that are fulfilling and things that are fun even if you are living with a chronic illness or are always in a wheelchair. You just have to learn to adjust what your limits are and go ahead and push them! Just PLAN your time for recovery, so you can push those limits again.